Get Involved

Join our movement to support children with rare diseases. There are many ways to help!

Become a Teen Ambassador

Join our network of teenage advocates and make a real difference in the lives of children with rare diseases.

Share your time and skills to help us in various capacities, from organizing events to providing administrative support.

Your financial support helps fund research, treatment, and support services for children with rare diseases.

We collaborate with organizations that share our mission to support children with rare diseases.

Help raise awareness about rare diseases by sharing our message with your community and on social media.