Our Programs

Discover the various initiatives we offer to support children with rare diseases.

Join our network of passionate teenage advocates dedicated to raising awareness and funds for children with rare diseases.

Discover creative ways to raise funds in your community to support research and treatment for children with rare diseases.

Help spread awareness about rare diseases in schools and communities through our educational resources and programs.

Connect with other families affected by rare diseases and find community, resources, and emotional support.

Join our advocacy efforts to increase funding and attention for research on rare diseases affecting children.

Participate in our online events that connect children with rare diseases to supporters around the world.